Good news! … sort of
Read to the end for a special offer.
We had been seeing and taking recommendations from a neurosurgeon for the past few years. He told us to that my brain wasn’t bleeding after November 2020. The cavernous malformations – some would call them lesions, some might even call them tumors – were not doing any damage.
However, my symptoms have continued to worse. My speech has gotten worse, I’ve fallen a few times because my balance is so bad, and my driving hasn’t improved.
OK, that last one doesn’t count since I haven’t driven in more than 2 years.
The neurosurgeon told me to go see my neurologist. After waiting a few weeks to get in, he put me through my paces. Gave me every physical test he could think of and then some.
After all that he was gone for 20 minutes speaking with his “Attending Physician”. Then they both came into the room.”We’ve noticed a small area in your brainstem”. This is where all of my cavernous malformations are located. Your brain has gone through a lot. It does it’s best to keep up with all the changes, but that is where information comes into your brain and goes out.
The differences that you see are the result of “wear and tear” after all that you’ve been through.
Good news! … sort of
In the end they recommended Occupational Therapy for my right hand and Physical Therapy for my walking. They’d prefer that I not fall down anymore. Fair enough.
We all have something. I’m just brave enough to tell you about it. Not for sympathy.
You have a disability. We all do. Sometimes they’re seen. Sometimes they’re not.
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